Our Aims
Patient and Public Involvement and Engagement (PPIE) is important to our research. It helps us ask research questions that are relevant to people affected by long-term health conditions. We work closely with local and regional public, community, and patient groups. This helps us to reach out to those with the greatest need and to make sure our research findings are easy to understand and shared widely.
Examples of ways we involve people in our research include:
Working together to develop research ideas and questions
Working together to shape how research is carried out
Discussing results and what they mean
Communicating and sharing research findings
Those involved in our research are people with experience of long-term health conditions and their carers. We also involve health and social care practitioners, community representatives or those involved in supporting or providing care for people with long-term conditions. We work with a Patient Public Advisory Group (PPAG) who provide input and oversight on our work.
Patient and Public Involvement and Engagement (PPIE) strategy
Equality, Diversity and Inclusion (EDI) strategy
We also link into the NIHR funded Public Involvement front door. The Public Involvement Front Door combines a values-based approach with practical tips and resources to open up the world of public involvement and empower researchers of all experience levels to meaningfully involve public members in their work.
Patient and Public Involvement Groups
Please see below some examples of our research projects and how we are involving public members.
Opportunities to get involved in specific research projects or public involvement groups will be updated here. If you are interested in getting involved in our research or want more information, please Contact us.
Unpaid/informal carers who care for anyone with MLTCs at any age
Formal carers, anyone who has accessed home care services and using multiple medication / have multiple long term health conditions
Community pharmacists, gen members of the public
Anyone with MLTCs who has experiened care delivered through a north east virtual ward
Young people in the North East, some have experience accessing healthcare but generally for providing young people’s perspectives
People with personal experience of living with MH-MLTCs and / or being family carer (parent, grandparent) to a child with MH-MLTCs
Qualitative research with health professionals to explore care pathways associated with emergency presentation of colorectal or lung cancer. Initial discussion of research concept. subsequent discussion may consider recruitment documents and interview guides and research findings/ implications. Depending on results, this may lead to co-design of strategies to improve outcomes following emergency presentation.
Co-Designing AI Models for Clinical Decision Support, understanding AI models and explainability, PPIE evaluate how understandable AI-generated insights are.
Impact on research
Blogs and articles showing how the NIHR Newcastle PSRC PPIE has impacted research
Bringing carers together to share their insights.
Speaking openly and publicly about my experience brings some relief, knowing that health professionals and researchers want to hear the “good, the bad and the ugly” about failures of health care in the UK, is refreshing.
Raising awareness fo the unpaid, unselfish work unpaid family carers do
Why PPIE, by Olivia Grant, Public Patient Involvement and Engagement, Lay Co-Theme Lead.
Impact Case study: by Abi Collins, PhD student
